The past couple of weeks

I thought I would post an update on our cute little family and how we are all doing. First thing is Avery turned 5 in January and Lincoln just turned 3 on Valentines day. My Dad and Carrie were visiting from Nevada and we got them for a whole week!! The kids had so much fun while they were here. Jared just finished up his medicine rotation yesterday and start surgery on Monday. I know he is so excited :( He is doing awesome and we can't believe we are almost finished with our third year of medical school. Liam is doing WONDERFUL!!! As of right now we are just waiting for him to be taking all of his food by mouth, getting rid of his morphine addiction, and he also needs a skeletal scan from head to toe. They think he might have a tethered cord and if so he might have to have another surgery for it. They also just want to scan his whole body just to make sure they don't miss anything. I have had a lot of people wanting to know,s as far as his little body goes, what he can expect in the future and what things look like. He will have his urostomy bag until he is one and then will undergo another surgery to reverse that, he will have his colostomy bag for life. This will mean no baths or showers, swimming etc. unless we can figure out a way to keep his bag dry. He has the scrotum part but not the penis part. Later in his life we will find a plastic surgeon that can construct one for him if he would like. He has an opening that the urine drains out of into his diaper. When he is around 4 or 5 they will see how much bladder control he has and if he doesn't have much they will go and do a bladder neck repair or a sling to fix that and he will have to probably self cath each time he has to go to the bathroom. His cute little bum is about half the size of a normal bum so it looks normal just very tiny and way cute! He has started to smile and try to talk. He is getting so big and loves to cuddle. He is so strong.

Linc and his cake


Lincolns new bike (he rode it all through the house, he was so excited) and birthday catch up from Grandmas and Grandpas!

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We got Liam this very cute and very soft bouncer. Since he is lying down a lot his little back is getting some sore spots so this chair is helping him a lot, plus he LOVES it!!




Liam being weighed, he is almost 12 pounds now! This is about as naked as he can be.


Liam in his new snuggly, Thanks G.G.!!!


Every ones first time holding Liam, except me.





This is about half of his scar, it is healing up very well!


This was yesterday right after he had his pain meds and food. He was out! Liam loves his hands! He has them just a going all the time. He tries to pull out his air and NG tube all the time so we keep socks on them most of the time.




I am sooo in love with this little boy. I cherish every moment I get to spend with him and am so thankful for all that we have been blessed with.